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Cómo apoyar a alguien con Tinnitus

En el peor de los casos, el tinnitus , el término médico para zumbido en los oídos, puede convertirse en una tortura, destruyendo por completo la calidad de vida de quien lo sufre. Los niveles de ansiedad y estrés se disparan, dormir se vuelve cada vez más difícil y el ruido es ineludible. El sonido nunca se detiene y, con demasiada frecuencia, la esperanza no forma parte de la ecuación.

Es terriblemente difícil ver a alguien que amas sufrir tan severamente.

La mayoría de las personas en esta situación preguntan: “¿Cómo puedo ayudar?” O “¿Qué puedo hacer?”

Pero con un problema de salud complicado como el tinnitus, las respuestas no son obvias y es posible que su ser querido tampoco lo sepa.

La buena noticia es que usted tiene el poder de ayudar, tanto directa como indirectamente, de manera que realmente marque la diferencia.

(Si usted mismo sufre de tinnitus, ¡comparta esto con sus amigos y familiares!)

Una enfermedad invisible

Lo primero que debe comprender sobre el tinnitus grave es que cuando no se ve enfermo, todo el mundo automáticamente piensa que está sano. Pero no lo estás, estás sufriendo mucho, y nadie realmente entiende por lo que estás pasando, suponiendo que incluso si te creen desde el primer momento.

Este es un gran desafío para los pacientes con enfermedades invisibles en todos los ámbitos. Pero en el caso del tinnitus, es aún peor, porque la mayoría de las personas han experimentado un zumbido temporal en sus oídos después de un evento fuerte de una manera que no fue problemática en absoluto. Como resultado, pensarán que estás exagerando. Lo experimentaron ellos mismos y no fue un problema, por lo que la mayoría cree que no podría ser tan malo como usted describe.

Están equivocados.

¿Conoces esa terrible sensación que tienes cuando escuchas clavos en una pizarra? ¿Cómo irrita tus nervios de la manera más incómoda que puedas imaginar? Cuando es malo, el tinnitus es exactamente eso, solo exponencialmente peor, porque nunca termina.

Los niveles de ansiedad y estrés aumentan a niveles incontrolables, a medida que el pánico se afianza. El ruido hace que sea difícil (si no imposible) dormir, y la privación crónica del sueño solo aumenta el sufrimiento.

El trabajo también es un desafío, si aún puede trabajar. Es increíblemente difícil concentrarse con el sonido de tinnitus constantemente sonando en sus oídos, las 24 horas del día, los 7 días de la semana.

Los médicos tampoco siempre ayudan con este problema. A tantos enfermos de tinnitus se les dice que no hay nada que puedan hacer, que solo tienen que vivir con eso. Esto simplemente no es cierto: un alivio duradero es totalmente posible, pero la mayoría de las personas no cuestionan a su médico. Y entonces solo terminan sintiéndose más desesperados y asustados .

Su ser querido está sufriendo terriblemente y la mayoría de las personas que lo rodean ni siquiera intentarán entenderlo.

Pero puedes ser la persona que crea que su dolor es real. No puedes quitarles el sufrimiento, pero puedes validar su experiencia, y eso marca la diferencia en el mundo.

Puedes ser el que entiende.

Compasión y empatía

Educarse a sí mismo es un buen punto de partida. Tómese el tiempo para aprender más sobre el tinnitus y la naturaleza específica del sufrimiento de su ser querido.

Nunca tendrá el poder de quitarle el dolor a su ser querido, pero es importante pasar tiempo tratando de entender su situación porque abre la puerta a la empatía.

Estos son algunos de los conceptos básicos para comenzar: El tinnitus es la experiencia de escuchar sonidos cuando no hay sonidos externos presentes. No es una afección en sí misma, sino un síntoma de muchas afecciones diferentes, como pérdida de audición, lesión de cabeza y cuello, trastorno de la articulación temporomandibular (ATM), trastornos vestibulares como la enfermedad de Meniere y neuromas acústicos , solo por nombrar algunos.

Es mucho más frecuente de lo que la mayoría de la gente cree, y afecta a 10-15% de la población general según la mayoría de las estimaciones. Eso es más de 50 millones de personas solo en los Estados Unidos, con cientos de millones de pacientes en todo el mundo. Y a partir de ahora, no hay cura.

Afortunadamente, el tratamiento es totalmente posible. Muchas herramientas de afrontamiento pueden ayudar a los pacientes con tinnitus a encontrar un alivio temporal en medio de un momento difícil, y un alivio duradero también es posible a través de un proceso mental llamado habituación. Las víctimas pueden llegar a un lugar donde el sonido ya no los molesta , donde su cerebro simplemente comienza a desconectar el sonido de su conciencia cada vez más.

Pero lleva tiempo, independientemente de la estrategia empleada, y no es un viaje fácil. Habla con tu ser querido. Pregúnteles acerca de su experiencia, y cuando no entienda algo, pídales que le expliquen. No tendrán todas las respuestas, y eso está bien. Solo tratar de entender por lo que están pasando es un consuelo y te pone millas por delante de todos los demás a quienes no les importa.

Así que trata de ponerte en su lugar. Cuanto mejor comprenda su situación, más auténtico será su apoyo a sus ojos.

Ayuda a tu ser querido a relajarse

Diariamente, los pacientes con tinnitus se enfrentan a grandes cantidades de estrés y ansiedad. Están esencialmente atrapados en un estado extremo de lucha o huida, y es un círculo vicioso. El estrés y la ansiedad exacerban aún más el tinnitus, causando solo más ansiedad, y así sucesivamente.

Cuando sufre activamente, puede haber una serie de cosas que su ser querido puede hacer para sentirse mejor, pero es muy difícil pensar o actuar racionalmente en medio de una experiencia emocional tan intensamente negativa. Es increíblemente difícil tener la presencia mental necesaria para levantarse y hacer algo al respecto cuando hacer algo al respecto requiere esfuerzo.

Afortunadamente, las técnicas de relajación pueden ser una forma efectiva de hacer frente al tinnitus. Y puede tener un impacto real en el estado emocional de su ser querido al ayudarlo a relajarse, tanto mental como físicamente, en medio de un momento de sufrimiento.

Puede ayudarlos a relajarse mentalmente alentándolos hacia un pasatiempo relajante, ejercicio físico, técnicas de respiración, aromaterapia, meditación, práctica de gratitud, sexo, música , entrenamiento de ondas cerebrales o cualquier otra actividad que disfrute su ser querido.

También es importante abordar el estrés fisiológico, porque cuando el cuerpo está profundamente relajado, la mente generalmente lo sigue. La conexión mente-cuerpo es real, simplemente no siempre es obvia. Pero es por eso que te sientes tan tranquilo después de un gran masaje.

Tienes muchas opciones aquí. Puede darle un masaje a su ser querido o sugerirle un auto masaje con una bola de lacrosse o un rodillo de espuma (también conocido como liberación miofascial). Puede alentarlos a tomar un baño o ducha caliente, o llevarlos a una sauna, baño de vapor o bañera de hidromasaje. Realmente cualquier cosa que ayude a su ser querido a relajarse físicamente lo ayudará a relajarse mental y emocionalmente.

Cuantas más técnicas de relajación pueda ayudar a su ser querido a utilizar, mejor podrá hacer frente.

Poner ruido de fondo

El enmascaramiento de sonido es una de las estrategias de afrontamiento más simples disponibles para quienes padecentinnitus. Cuando el sonido es molesto, se puede encontrar un alivio temporal al ahogar algo con ruido de fondo.

No es una solución perfecta: si su ser querido tiene pérdida auditiva o si su tinnitus es demasiado fuerte, el enmascaramiento puede no funcionar muy bien, si es que lo hace.

Pero como herramienta de afrontamiento, cuando funciona, puede ser extremadamente eficaz. Y es algo que puede hacer por su ser querido para ayudarlo directamente.

Todo lo que tienes que hacer es poner un poco de ruido de fondo. La música, los sonidos de la naturaleza, el ruido de banda ancha (ruido blanco, rosa o marrón) y los podcasts o programas de radio pueden funcionar bien. Realmente cualquier sonido que su ser querido encuentre relajante o entretenido puede hacer el trabajo, por lo que es una buena idea explorar diferentes opciones de enmascaramiento con anticipación, cuando no están sufriendo tanto.

Solo asegúrese de mantener el volumen del ruido de fondo por debajo del volumen de su tinnitus siempre que sea posible. De lo contrario, su volumen de tinnitus podría aumentar un poco cuando la máscara está desactivada.

Por más obvio que parezca este consejo, he descubierto que muchas personas que padecen tinnitus se resisten al enmascaramiento del sonido cuando tienen dificultades. Algunos afectados expresan que activar el enmascaramiento de sonido se siente como darse por vencido, como si hubieran perdido la batalla de alguna manera, por lo que generalmente algunos lo evitan por completo.

Entiendo el sentimiento, incluso lo he experimentado en mi propio viaje con tinnitus, pero es inútil. Si poner ruido de fondo es todo lo que se necesita para sentirse mejor en medio de un momento difícil, no deben dudar.

Distraerlos del problema

Todos somos totalmente capaces de desconectar el ruido de fondo de nuestra conciencia con un proceso mental llamado habituación. Lo hacemos automáticamente, todo el tiempo. Es cómo podemos mantener conversaciones en restaurantes ruidosos y mantenernos enfocados en nuestro trabajo en entornos de oficina ruidosos.

Pero cuando se trata de tinnitus, hay un gran problema: evolucionamos para usar el sonido como una forma de monitorear nuestro entorno en busca de amenazas, y es simplemente imposible ignorar un sonido que el cerebro interpreta como peligroso.

Cuando escuchamos el sonido de algo peligroso, tenemos una respuesta de estrés de lucha o huida. El problema aquí es que el cerebro no es muy bueno para distinguir entre el peligro real y las amenazas imaginarias como el tinnitus. Entonces, reaccionamos al sonido como si el peligro fuera real, solo la respuesta de lucha o huida nunca termina realmente, porque el tinnitus no desaparece mágicamente.

Pero la mayoría de los pacientes pueden ignorar el sonido de su tinnitus al menos parte del tiempo. El desafío es que generalmente solo ocurre cuando están completamente comprometidos con alguna actividad que realmente disfrutan.

Este tipo de distracción ofrece un alivio temporal, y también es una pequeña muestra de lo que se siente habituarse (la diferencia es que cuando se habitúa por completo, se siente así la mayor parte o todo el tiempo, no solo cuando está muy distraído) .

La próxima vez que su ser querido tenga dificultades, puede ayudarlo a sobrellevarlo de manera más efectiva al distraerlo del sonido. Anímelos a participar en cualquier actividad que disfruten que les ayude a ignorar su tinnitus. Mejor aún, ¡sé parte de la distracción tú mismo!

La mayoría de las veces, esto puede ser suficiente para ayudar a su ser querido a superar un momento de crisis.

No te frustres

La parte más difícil de ver a un ser querido luchar con una afección crónica como el tinnitus no es el tinnitus en sí. Es la naturaleza repetitiva y sin fin lo que lo hace tan difícil. Sufren, luego sufren una y otra vez.

A medida que intentes apoyarlos, a menudo te sentirás frustrado, pero es importante tratar de mantener la calma. Cuando su ser querido está sufriendo, están a merced de fuerzas fuera de su control. No quieren sentir lo que sienten y, por lo tanto, pueden enojarse, estar emocionalmente necesitados, distantes o tristes.

En cualquier caso, es seguro decir que sus interacciones no siempre serán tan racionales como cabría esperar en circunstancias normales. Y es fácil perder la calma cuando sus buenas intenciones se encuentran con hostilidad, o una reacción que no esperaba. El dolor saca lo peor de una persona.

Pero si puedes mantener la calma y mantener la cabeza fría, el momento difícil pasará. Y apoyará a su ser querido de una manera que realmente tenga un impacto. Es un desafío, pero al final vale la pena el esfuerzo. Porque puedes marcar una verdadera diferencia en la calidad de vida de tu ser querido.


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